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The Ken Burns Event

Just like many millions of people, I spent the past three nights watching Ken Burns’ Cancer: The Emperor of All Maladies. This has been something I have been very excited about, have talked about, blogged about, posted, and tweeted since I learned that the Pulitzer-prize winning book by Dr. Siddhartha Mukherjee was going to be made into a documentary.

My impressions:

First of all, in my history and devotion to PBS, I have never seen as many sponsors listed before the Continue Reading…

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As many of you know I have a genetic defect called Li-Fraumeni Syndrome.

Per ‘’Medscape” Li-Fraumeni syndrome (LFS) is a rare autosomal dominant syndrome in which patients are predisposed to cancer. Li-Fraumeni syndrome is characterized by the wide variety of cancer types seen in affected individuals, a young age at onset of malignancies, and the potential for multiple primary sites of cancer during the lifetime of affected individuals.

(see http://emedicine.medscape.com/article/987356-overview)

This past year a group of friends that also are affected by LFS started a non-profit called LivingLFS.org. All of us ‘met’ in a ‘closed’ Facebook support group and then in person last year. It Continue Reading…

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As communication has evolved to include blogs, Facebook, Twitter, Pinterest and Instagram, we now have this new term called ‘selfies’. A selfie is defined as someone who takes and posts pictures of oneself on the Internet. But the term or label has now somehow expanded to those who share anything personal.

Humans, being social creatures, have a need to connect, even when society in the larger context doesn’t want to. Unfortunately, once again, I am appalled by the non-supportive view of cancer in the press. On Sunday 1/12/2014, The New York Times – The Opinion Pages, posted a piece by Op-Ed Columnist Bill Keller (former executive-editor) entitled ‘Heroic Measures’. Continue Reading…