Archives For Support Groups

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As many of you know I have a genetic defect called Li-Fraumeni Syndrome.

Per ‘’Medscape” Li-Fraumeni syndrome (LFS) is a rare autosomal dominant syndrome in which patients are predisposed to cancer. Li-Fraumeni syndrome is characterized by the wide variety of cancer types seen in affected individuals, a young age at onset of malignancies, and the potential for multiple primary sites of cancer during the lifetime of affected individuals.

(see http://emedicine.medscape.com/article/987356-overview)

This past year a group of friends that also are affected by LFS started a non-profit called LivingLFS.org. All of us ‘met’ in a ‘closed’ Facebook support group and then in person last year. It Continue Reading…

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The following was submitted as a guest post written by Phyllis, a member of The Nation of Cancer.

Reinvention

Forty years as a Mrs.

That was my identity.

Employment, residences, they came & went–all were transient.

Our children grew up and successfully outgrew the nest.

My identity was safe, solid, unchanged, and secure. Continue Reading…